Ramblings of a Disabled Christian

This is a place for me to share my thoughts and feelings about Christianity, suffering, disabilities, and related topics. This blog is constantly evolving. I post an average of once or twice a week and my posts and I have both condemned and uplifted, encouraged and discouraged, enlightened and confounded. If you would like to contact me about one of my posts and the comment feature is not working, pleace email me at jrhart1974@yahoo.com

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Location: Louisville, Kentucky, United States

Monday, June 27, 2005

The Postmaster a.k.a. the church leaders

In Joseph Shapiro's book on the Disability Rights Movement, No Pity, he tells a story that goes something like this:
A postmaster in a small town was told he would have to make his U.S. Postal Service building accessible to people who were disabled. The only entrance to his post office was a revolving door too small for even the smallest of wheelchairs and it was at the top of a very high, very steep flight of stairs. The postmaster protested the mandate stating very simply, "I have worked at this post office for 30 years and I have yet to see a person in a wheelchair enter this building.


The postmaster in this story could easily be replaced with the leaders and/or members of many churches in the United States today. I'm going to make a controversial statement here, but I believe that many churches design their buildings and their programs/activities to keep people with disabilities from participating. It's been done for many years and it's still going on today. No one would ever admit they were doing such a thing but if you went to a church building committee meeting, you might very well hear something like, "Well, we've never had anybody in a wheelchair come to our church before so we could save money by not building ramps on the new building either." Or perhaps you might hear a statement like this in response to a request for money for sign language training, "We don't need to spend the money on that. We've never had a deaf person attend our church before so it would be a waste of money to train members to translate the sermons for hearing impaired people." And one of my favorites, "Let's have that fellowship over at JimBob's house, where we always have it. Sure he's got a flight of stairs leading into his house but none of our members who use wheelchairs have ever expressed an interest in attending our fellowship."

Do you see the utter stupidity of these arguments. Yes, saving money is often a necessary thing to do. However, the disability community in the United States is too often ignored and even disgarded by the Christian Church. Oh we see pictures and hear stories of how our missionaries are helping disabled children in Africa and we even hear the occasional story about a church raising funds to help a disabled child in the U.S. Disabled children are "precious angels" or "miracle children" or "inspiring stories of hope and healing." But Disabled adults are no longer "cute" to put on TV or in the magazines. One writer wrote that to many churches we are "conscious reminders of all that is imperfect in the world." It is time to defeat that attitude and to show churches not only how simple it is to accomodate people with disabilities but why they should.

First, it's Scriptural to reach out to people with disabilities. 2 Corinthians 1:3-4 says "Praise be to the God Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles so that we may comfort those in any trouble with the comfort we ourselves have received from God." Jesus said in Matthew 25:36;40 "I was sick and you looked after me. . . . I tell you the truth, whatever you did for the least of these brothers of mine, you did for me." Just like many nondisabled people, many disabled people are hurting emotioinally and wounded spiritually. Christians are called to reach out to everyone who needs the Lord and that includes disabled individuals.

Second, reaching out to people with disabilities is a way to grow the church. In 1990 the government estimated there were roughly 49 million people with disabilities in the United States. That was 15 years ago. The population is older now and medical advances have led to people surviving medical conditions and/or traumas that would have been fatal 10 or 15 years ago. Although people are surviving such things, they are becoming disabled from them and so the disabled population is increasing dramatically. Therefore, even if you don't reach out to disabled individuals in your community, inevitably people in your church are going to become disabled and you're still going to have to deal with it. So it just makes sense.

How does a church accomodate a person with a disability? It depends on the individual. There are some staple accomodations you should have in your church though. First, you should have spaces for people who come in wheelchairs so that they are not sitting in the aisle creating a fire hazzard. The last church I attended did this by replacing their pews with chairs and removing a chair or two from an aisle when a person in a wheelchair came in. My current church has certain pews that are shorter so that there is a space for a wheelchair at both ends and room for both individuals to have a companion sit in the pew beside them. The one thing you don't want to do is stick them all the way in the back behind everybody else where they can't see anybody. Next, have large print materials such as pamphlets about your church and your church's activities, song sheets, and weekly bulletins. If you do not have anyone who needs the large print song sheets or bulletins each week, just print one or two of them in case someone shows up and then if you need more go print more. It doesn't cost very much to do this. Next, have at least two members who are trained in sign language so that if a person with hearing impairment comes to worship at your church, they will be able to receive the Word that is preached. I said at least two because the fewer you have the more likely they'll all be gone one week when you need one. Also, if you have steps leading into your building, build ramps. Finally, if you have people with mobility impairments, plan your offsite activities at accessible locations so that they can participate. If you are consistently having them at places that have steps and no ramps and nobody with such a disability is expressing an interest in coming, it's probably because they feel they aren't wanted at the fellowship.

I know this has been a long post but I want to discuss one more thing before I end this one. When I was doing a lot of disability activism, I never liked to tell people what to do without pointing out emphasizing the benefits to them and I am not going to break my policy here either. Of course I've already discussed the possibility of gaining new members. I made a statement about current church members becomming disabled and I must point out that would fall under member retention. If you think about it, if a 40 year old man becomes disabled and can't come to your church anymore, his wife and children will probably leave with him as well as a few of their close friends. In a small church, that could be a major cut in attendance. But there's another benefit that many churches may receive--good publicity. Wouldn't you like to se this headline on the front page of your paper or at least on the front page of the religion section, "BEECHWOOD CHURCH BECOMES DISABLILITY FRIENDLY"? I'll leave you with that thought.

God Bless you,
James

Sunday, June 26, 2005

My feelings on healings

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Disclaimer: Please read all the way through this post before you even begin to formulate a response to it. Also, as I will probably say several times before I end this post, I am not discounting people who have actually experienced physical healing. I am just addressing my experiences and the experiences of some of my disabled friends. With that out of the way, let the ramblings begin!
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Picture it. Summer of 1998. In a subway station in Washington, D.C. I'm there in my electric scooter and there is a group of excited student missionaries waiting on the same train. A girl not much older than 18 comes over and asks if they can pray for me. I'm a Christian and believe that no amount of prayer is too much so I said "Sure, go ahead." All of the sudden there are about 10 sets of hands on me and the inevitable prayer is said, "Dear God, Please heal this man's legs so that he can walk again. We claim this healing in Jesus Name. Amen." I'm sure there were more words but that was the just of the prayer. At this point my mischeiveous side tells me to get up and do a little dance for them (I can walk but use the chair for longer distances). Instead, I thanked them for the prayers and let them go on their way. Looking back, what I did was just as wrong as if I had gotten up and danced for them.

You see, the Christian church has a very long history of trying to force God to heal anyone with a disability. Yes, He does do it sometimes but many times, He chooses not to do so while the individual is in his or her earthly body. Hence the statement that is, in my opinion, the most harmful to a Christian who has a disability--"If you only had enough faith. . ." If I only had enough faith I'd move that mountain over top of your BMW and drop it.

If I only had enough faith, if my friends only had enough faith, then we'd all be healed? Or are we already healed and all you nondisabled people lack the ability to understand it? The Scripture says "By His stripes we are healed." It doesn't specify what type of healing we will receive nor does it specify where we will be healed. I once read an article that stated that there is a difference between being "healed" and being "cured." Being "healed" means we "do not suffer" from our conditions anymore. Being "cured" means we do not have them anymore. I live every day with countless medical conditions and with both schizophrenia and bipolar disorder (two very serious psychiatric disorders). I am in more pain at any given moment of the day than most people would live with for 5 minutes without rushing to the ER or the Doctor for narcotics. Yet I keep functioning because my only other choice is to give up and what good is the life that Christ gave me if I give up. You see, I do not suffer from my disabilities anymore. I am healed and one day, when I enter the pearly gates, I will be cured.

"By His stripes we are healed" could also refer to a spiritual or emotional healing. I know that my spirit has been broken down many times and He has put it back together and made me stronger. He is also in the process of healing emotional wounds from my childhood and from other periods in my life. It is taking time but as I slowly give them to Him, He takes them and repairs the wounds. The Scripture calls Him the Prince of Peace, the Wonderful Counselor, and even the Father of the Fatherless. As long as I'm on earth, I will always have the scars from my childhood and from the other traumas I've been through but my Heavenly Father is "healing" those wounds so that I do not suffer from them.

If you're reading this and you're thinking to yourself, "I need healing", please feel free to email me at jrhart1974@yahoo.com I can promise you only that I will try to point you towards the Answer to every need we have, Jesus the Christ. I will try to answer any questions you have and I will try to point you to Scripture verses that can help you but the ultimate answer is in the Three-in-One, The Father, The Son, and the Holy Spirit. Whem you truly seek them, you will never go wrong.

God Bless,
James

Until I see her again

I haven't seen her tombstone but I can imagine it has these words on them:

Born July 3, 1949
Died August 29, 2003
Beloved Wife, Mother, and Grandmother.

Those words or some words like them are what were chosen to sum up my mother's life. Sitting here tonight, this thought seems to cheapen my mother's memory. It angers me that her life would be summed up by a few words like "Beloved Wife, Mother, and Grandmother." What happened to "daughter" or "aunt" or "friend" or "nurse." She was all of those things and more. Although she had no medical training, my mother nursed me back to health countless times and knew more about the medical field than most of the nurses and doctors we encountered in the hospital. She was my friend and often my only one. We would go to my doctor appointments together or sit in my hospital rooms together and play cards or other games.

She was my encourager. She tried to never let me underestimate myself. Balanced with her wisdom, I received the courage from her to branch out and try new things like going away to college. I may have started at a small 2-year college only 15 minutes from home but I lived on campus. When I had completed my 2 years there, I took another step and transferred to a state school with 13,000 students and lived right off campus in student apartments. This school was 1 hour and 45 minutes from home. While there I traveled to Washington, D.C. and New Orleans and Florida. I spent one summer studying at U.C. Berkeley (all the way on the opposite coast) and the next summer working in D.C. I could never have done those things without my mother's encouragement and her support.

As with most of us, I tend to think of my mother in terms of her faults. However, I will try to keep in mind all the wonderful gifts she gave me until I see her again.

Friday, June 24, 2005

Introduction

My name is James Hart. As the title of the Blog says, I am a disabled Christian. I am also 31 years old and married to a wonderful Christian woman. Both of us are very active in our church and she works at the church as an administrative assistant. During my college years I did a lot of disability activism work but I have been unable to continue that work in recent years. I'm hoping I'll find some opportunities soon to get back into disability activism as I love advocating for people with disabilities who need the kind of help I can provide.

A lot of people ask me why it is so important that I label myself a "disabled Christian" on the net. Well, it is because I want to be real. Those two aspects of my life define so much of my being in real life that I might as well be true to myself online also. You see, I was born with Spina Bifida and a very large cyst on the front of my spinal cord. I have a very long list of diagnoses and have had 48 operations. I take close to $3000 or $4000 in medication each month. I use a wheelchair for distance mobility and I'm on oxygen at night and with exertion. So there is no getting around the fact that I am disabled. There's also no ignoring the fact that I'm a Christian. I gave my life to the Lord when I was a teenager. I've strayed a few times (O'k, quite a few times) but He has always welcomed me home. He has provided for me in ways that cannot be explained in human terms and He has called me into His service to use my disabilities to help other people. Therefore, my disability comes through as I express my Christianity and my Christianity comes out as I discuss my disabilities. The two are forever meshed in my life and in my being.

I love writing and I use it to express my thoughts and feelings. I write poems and I've tried my hand at song lyrics. I've written a few little skits that could be performed in a youth group or a church setting. I'll probably post some of those as time passes. I will also share more of my background and write about my relationship with my wife. Until then, Goodmorning/evening/night, and God Bless.

Sincerely,
James Hart